Not sure if panic attack or just fart

I try to only write blogposts when the content has settled enough in my mind to be coherent. If it’s not coherent I mostly either don’t write it or delete it in the middle of the night after posting because I’m ashamed of it. To a certain extent, I think that’s good. Since I stopped brain farting all over this blog I’ve learned how to let my thoughts simmer, see which ones stay around and which evaporate. If they stay they usually form themselves into some sort of pattern and I can do something with that. But sometimes it feeds my insecurities and my reluctance to let anyone see the messier version of me. It’s why I prefer writing. Speaking often involves some mild stuttering these days. Writing makes me seem much more together than I really am.

But I realised over the last week that I’m having a hard time pinpointing how I feel. Sometimes my thoughts, emotions and physical sensations don’t match up and it’s disconcerting. It’s ramped up since yesterday as I prepare to go back to work next week. So instead of letting thoughts settle and then using writing to finish that process, I could try and use writing to bring some order to chaos.

I have started to go stir crazy. Probably not surprising as I’ve had minimal contact with people for six weeks, but it actually took five weeks for me to feel it. For those first five weeks I was happy to stay indoors and knit. I couldn’t even summon the motivation to bake cookies. I moved from bed to sofa to bed most days. I’ve been showering about twice a week, only when I have to leave the house. The trip to Morocco was tricky because I had to fight the urge to stay in the hotel every day. I went to see my family one day a couple of weeks ago and was craving solitude after an afternoon. I sometimes eat over an hour after I get hungry because it takes me that long to move myself and make something. It was just a few days ago that I noticed the change – I was fed up of the flat. I thought that day would never come. ;-)

I’ve taken it as a promising sign that I am ready to go back to work. Be where the people are. Do all the things. Except I suspect I’m not ready to be where the people are all the time and I’m not capable of doing all the things. Hopefully I can do some of the things and be around people some of the time without wanting to top myself after a few days.

I think I’m feeling some anxiety. I’m sure that will come as a surprise to my readers, what with me usually being such a chilled person. Today is proving difficult so far because there’s some feeling of agitation. Maybe restlessness like I should go back to work, maybe nervousness at the thought of going back to work. Maybe post-seeing-friend self-flagellation. Maybe post-crappy-being-shot-in-Syria-combined-with-being-unable-to-find-yarn dream from last night. Maybe I should just have a fucking shower. It could be any of these things making me feel odd today, they’re all very ‘me’. Whatever it is, it’s not responding to the self-soothing tactics I’ve honed over the last few weeks – well, honed makes it sound more than it is, it’s pretty much getting Mr Narky to give me a cuddle, knitting and watching Star Trek. I can’t make the feelings go away so I’ve just had my first drink of wine – at 2pm. Straight from the bottle because I’m that classy. That’s not great, but when the one thing (Diazepam) that stands a chance of helping is not available to you, sometimes you just have to go with the next best thing.

I know my life can’t stay on hold forever. If I don’t go back to work soon others will have to take over large parts of my job and that’s a horrible thought. Seven weeks is the longest I’ve ever been off, and that’s enough. The enforced quiet of these weeks has slowly quietened things down inside me. It’s slowed me down, given me the space to get some perspective about my job and given my boss the opportunity to properly learn about my job, which he had not done, and I had not encouraged him to do, before this. I know I have to pick up the threads of my life again but I am concerned that I won’t know how to contain my anxieties or my energy levels once I do that.

Another thing that’s ramped up its lurking presence in my mind is the CMHT referral. My GP made an urgent referral because of the suicidal impulses I was experiencing. It’s been six weeks and I’ve had one phone call from them. Mr Nice But Pointless told me that I would be given a face to face appointment but it would not be for three to four weeks. I get that, knitting and watching Star Trek has put thoughts of suicide at a distance, so I’m hardly a priority case. I don’t hear voices or hallucinate in any way, I don’t hurt myself, I’m not manic or at risk of slashing my wrists in the bath any time soon. There’s really very little motivation for them to put their resources into helping me. I haven’t heard from them since the phone call two weeks ago. I thought Nice But Pointless meant I would see them in three to four weeks but now I wonder if his three to four weeks meant that would be when I could expect to receive a letter from them informing me of an appointment. Which would make it about two months from urgent referral to knowing when I have an appointment, God only knows how long until the appointment actually arrives. It was three and a half months last time.

Given how little the NHS gives a flying fuck about me, I’m tempted to cancel the referral myself. There’s such a high risk that psychiatrist lottery could make me feel worse about myself. I had a psychiatrist a couple of years ago who looked out of the window as I spoke to him and then sent me on my way after a five minute appointment. He made me feel like I wasn’t worth his time. I don’t want that to happen again. I accepted the referral when things were really shite but I’ve contained the shite now. Alright, things are still a bit weird, I’m not running on all cylinders and I’m resorting to booze when I feel like containment is wavering, but I’m less than confident that the CMHT can help. What I am confident of is that I don’t want them back in my life again, taking control away from me and making me feel about an inch tall.

I just remembered another thing taking up space in my head – what do I tell people when I return to work? When they ask me what has been wrong, and I think at least some will, what do I say?

I’ve had my legs in pins because I shattered them when I went go karting.

I had the flu.

I had a nervous breakdown.

I decided to kill myself so my doctor thought it advisable to take a few weeks off work.

Fuck off you nosy bastard.

It’s crowded in my head today. Half sentences and random words are on repeat. They’re really boring me. A song sometimes repeats the first line over and over, nicking words from other songs, until I end up swearing at myself. The words on repeat are matching themselves to my heart rate and my hands keep moving along to it as well. Faces, other people’s voices, they’re making a collage. And I can hear my own voice narrating, FFS.

It’s no wonder that when I feel a lurch in my stomach I can’t tell if it’s hunger, the beginning of a panic attack or a fart.

On that pleasant note, I’ll bid you farewell. The i and o on my keyboard keep falling off, it’s annoying me so I’ll go back to Star Trek.

The one about black balloons and trust

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These days I imagine myself as having a bunch of black balloons attached to me, following me wherever I go, whispering in my ears. Guilt, shame, fear – these three things fuel most of my moods, whether those moods are depressed, lethargic, agitated, still, whatever, the balloons stay. They’re powerful. They followed me to Morocco and hounded me one particular evening. So I went up to the roof of our hotel, listened to some music and did some knitting. As I watched the sunset over the old city of Fes I thought to myself that I have to learn to trust God, not the black balloons.

Over the course of 2013 so far it feels like I have capitulated to the balloons. When I wake up in a panic in the middle of the night I have sometimes been overwhelmed enough to wake up Mr Narky (no small task), unable to calm myself down, so convinced that the fears rampaging around my mind and body are real. They’re not real. Those black balloons lie to me, but they lie unceasingly. They try to destroy everything dear to me and it’s so hard to know what’s true and trustworthy when under their constant attacks.

So I get these little reminders every now and then, reminding me of what’s true. One was on that roof in Morocco, watching a sunset, trying to extricate myself from the weight of crushing depression. It came in the words of a song called Love Divine. It’s a new take on an old hymn by a band called Rend Collective Experiment:

Love divine, all love excelling
Joy of heaven, to earth come down
Fix in us thy humble dwelling
All thy faithful mercies crown
Jesus, thou art all compassion
Pure, unbounded love thou art
Visit us with thy salvation
Enter every trembling heart

Breathe, oh, breathe thy loving Spirit
Into every troubled breast
Let us all in thee inherit
Let us find the promised rest
Take away the love of sinning
Alpha and Omega be
End of faith as its beginning
Set our hearts at liberty

Come, Almighty, to deliver
Let us all thy life receive
Suddenly return and never
Nevermore, thy temples leave
May we be a blessing to thee
Serve thee as thy hosts above
Pray and praise thee without ceasing
Glory in thy perfect love

Finish, then, thy new creation
Pure and spotless let us be
Let us see thy great salvation
Perfectly restored in thee
Changed from glory into glory
Till in heaven we take our place
Till we cast our crowns before thee
Lost in wonder, love and praise

It’s such a beautiful song, full of comfort and hope. It challenges and inspires, guides and gives peace. It points to the truth. All I have to do is put my life in God’s hands, serve him, praise him, and then simply trust that I will find the rest he has promised.

Then at church last night we sang a song I’ve never heard before. I was struck by the timely reminder as I’ve spent this week so far in a bit of a fluster, having forgotten my rooftop lesson since arriving back in this damp country with my real life hitting sharply:

When we were in the darkest night
And wondered if our eyes would ever see the light
You were there, Lord

When we were in the stormy gale
And wondered if we’d ever live in peace again
You were there, Lord

You were there in the struggle
You were there in the fight
You were there all the time

We praise You – the God of our yesterdays
We praise You – the God who is here today
We praise You – our God, as tomorrow comes

So whatever lies ahead
Whatever roads our grateful hearts will come to tread
You’ll be there, Lord

We will fix our eyes on You
And know that there is grace enough to see us through
You’ll be there, Lord

You’ll be there in the struggle
You’ll be there in the fight
You’ll be there all the time

We praise You – the God of our yesterdays
We praise You – the God who is here today
We praise You – our God, as tomorrow comes

We thank you – for grace in our yesterdays
We thank you – for peace in our hearts today
We thank you – our joy, as tomorrow comes
We will trust you, God

You’re always closer than we know
Always more involved and in control
We will trust our lives to You -
The One who was and is and is to come

We praise You – the God of our yesterdays
We praise You – the God who is here today
We praise You – our God, as tomorrow comes

And then I noticed there are a number of new wall hangings temporarily hanging in the church. One has a poem on it which I noted down:

No choirs of angels
No round of applause
No hip-hop-hallelujahs
No song and dance

Be still
In secret

Draw with words and silence
The shape of your heart

This is prayer

Within this framework lay down
The fragile pieces of your life’s tapestry

Some beautifully made
Some tattered
Torn
Frayed

Some precious beyond meaure
Some worthless rags
The intricate designs
The random scraps
They are the patchwork of who you are

Every piece sewn together
By the unbreakable thread
Of forgiveness
Mercy
Grace

Woven from the love of God
Put aside the shadows of the future
Unseen, uncertain, unknown and unknowable

Live in the shining light of the present
And find peace in eternity

Be still
In secret

Draw with words and silence
The shape of your heart

Touch the power and the glory
For ever and ever
Now

This is prayer

I like this. It speaks of peace and comfort and trust. It reminds me of what trust is, moment by moment. And it reminds me that every scrap of me is welcome with God, that I don’t have to hide the shame-filled places inside me from him.

Till in heaven we take our place
Till we cast our crowns before thee
Lost in wonder, love and praise.

I suppose this is what trust is to me. It’s in not killing myself. It’s in living this life for however many years are given to me and trusting God for every year, every hour, every minute. This is trust at its most basic level. It is trusting that one day I will cast my crown before him, I will lose myself in wonder, love and praise, but until then I will trust him here. It is trusting that he is good, that he loves me, that he is in control of my life, that he has a plan for me, that he knows my purpose and that he will show it to me. Even more than that, harder than that, trusting him in the night when I panic, trusting him when I am consumed by fear, when paranoia has overtaken, when the black balloons are hounding me, no matter how hard it is to do, no matter how tempted I am to give up, forcibly dragging my will back to trust him.

And it’s being grateful for his gentle reminders when I forget. :)

Bewildered obedience

I’ve been signed off work for a further few weeks until the last week of June. The guy I spoke to from the Liaison and Intake Team was nice but ultimately useless. Maybe that’s harsh, he assessed me and said I’ll see a psychiatrist face to face, but not for three to four weeks. He told me to see my GP this week so I did and she said not to go back to work. It’s too soon, I don’t have the reserves to cope with it, the medication has had no chance to have any impact, etc. Liaison dude gave me crisis numbers, GP warned me against feeling guilty.

Fuck, this is scary. I have no idea when I will feel better. GP says I will, history says I will, but never have I been in such limbo. I can’t say to my boss when I will be returning to work. There’s no reason for it, my life is good. My job is good, my husband is good, my friends are good, even my knitting is becoming good. So what is happening to me?

A couple of weeks ago, when I had just been signed off work and referred back to the mental health team, I went to band practice at church. I struggled. I remember becoming more and more distressed as the evening went on and not knowing how to handle it. Mr Narky was nearby, my closest friend was right next to me, but I didn’t say anything because others were there too. Eventually, singing became too much for me and I rushed out into the hallway. I leaned against a wall and then started hitting the wall, gasping for breath. Mr Narky found me and asked what was wrong. “How can you ask what is wrong, you know what is wrong! This is shit, this is shit, this is shit!” Going back to a psychiatrist, not knowing how to make myself better, being off work for an unknown period of time, knowing that I have fallen so deep inside a hole that I don’t know if I’ll ever be able to climb back out… it all hit hard that evening. I got so distressed that I sank down on the floor while Mr Narky fetched water because I was finding it hard to breathe and my chest hurt quite badly. I realised later that our church secretary was in an office a few feet away and would have heard the various hysterical exclamations of SHIT erupting from me. Oh well. It’ll do him no harm. ;-)

Knowing that I still feel as frightened and bewildered as I did then is why I’m trusting the judgement of my husband and my doctor and doing as they say.

Compromised

Someone from the CMHT is calling me tomorrow. I assume it will be a psychiatrist but I could be wrong. My GP asked for an urgent referral, which must be the cause of phoning me rather than just giving me an appointment like civilised people. Seriously man, how can anyone be expected to talk honestly about their crazy over the phone? 1) Marbles go missing. 2) Marble-less person is referred back to an unknown psychiatrist. These two things are scary enough without adding 3) talk to unknown psychiatrist on a phone where you can’t see him and can only hear the sound of your own stuttering.

So I thought I’d better try to figure some stuff out before he calls. I was in Morocco last week and I’d honestly rather be writing about that, but real life is back and biting now so reliving memories of a sun-drenched land will have to wait.

I have been signed off work for one more week, making five weeks off in total. I’m supposed to meet my GP this week to discuss going back but that’s not looking too likely at the moment. This phone call may be the best I can hope for. I asked Mr Narky tonight if he thinks I’m ready to go back to work and his response, not altogether surprisingly, was no. He thinks my ability to cope with stress is compromised and I will collapse within a day or two of returning.

I’m afraid of that too. I don’t feel particularly capable of doing all the things that work requires. But maybe I never will so I should just get on and do it anyway? I know I need a fair amount of determination but I don’t feel very determined. I don’t actually feel any different at all to when I first went on sick leave. That’s a sad thing to admit. I should have got a grip on myself by now.

But when I get to ‘should’ that’s when I get myself into a tangle. I have absolutely no idea how to extricate myself from guilt and self criticism enough to be able to make a rational decision. I need to just explain how things are and, for a little while at least, let others make some decisions for me.

Next question [you can treat this as rhetorical, wot with me closing comments due to occasional bouts of ARGH paranoia]: If I’m too wrapped up in guilt and self criticism to be able to talk openly even to my nearest and dearest, even on my own friendly blog, if I flip into “I’m fine!” mode tomorrow, how will whichever unsuspecting caller has the misfortune to be landed with me know how to help me?

The man who walks beside me

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Come away with me, come away with me

It’s never too late, it’s not too late
It’s not too late for you

I have a plan for you
I have a plan for you
It’s gonna be wild
It’s gonna be great
It’s gonna be full of me

Open up your heart and let me in

I just put some music on and chose a Jesus Culture album because I love them and haven’t listening to this album for a while. This song is currently playing and it’s prompted a blogpost that has been brewing for a couple of weeks.

The imaginings of my previous post really were just imaginings. I realised myself yesterday that I am not fit for work. But I felt I couldn’t make that decision myself for various reasons, guilt featuring prominently. The other was fear. I was so desperately afraid that I had fucked up my job and if I wasn’t there then someone else would find me out. I thought I had forgotten to do something and then for weeks I had not checked if I had in fact forgotten the thing I thought I’d forgotten, because I was afraid that I was right and wouldn’t be able to handle it. So I kept my eyes averted until it was too late to fix the mistake I thought I had made. Yesterday I did the thing I needed to do to see if I had made the mistake. I cross referenced two lists to see if they matched. That’s it, that’s all I have ever had to do. And you know what? You know the really stupid, profoundly stupidest thing about the whole sorry mess? I had already done it. In February. I’d done it then and found out that I had not made a mistake. I had just forgotten I’d done it, then convinced myself I hadn’t, then convinced myself that by not doing it I’d fucked up a huge task that would result in me being found out as a fraud very publicly.

*Insert crazy lady laugh here*

I’ve put myself through so much stress for absolutely no reason at all.

Once I realised that, my first reaction (well, first after berating myself for being a cowardly twat) was relief. I don’t have to fear giving the task to someone else to complete because I’ve done it adequately until now anyway and so don’t need to spend the days and nights of my sick leave worrying about being fired as soon as I return.

My next reaction was to tell myself that as the task was no longer scary, I should go back to work and finish the damn thing. I imagine things to be scared of, but I can’t remember a time when they have turned out to be true. I’ve done a fair few scary things in my time (a night train through Morocco being stared at by Arab men at the age of 19 on my first trip abroad alone springs to mind) but nothing that I have imagined has ever materialised. Right! Back to work then. Enter Narky’s head:

You daft bint, you made it all up. You’re a coward, there’s nothing to be afraid of. Now stop being weak, pull yourself together, get a grip and do your job.

My GP thought otherwise. She looked so sad when I told her I wanted to kill myself a few weeks back and have thought about it on and off ever since. She’s signed me off work until 10 June, restarted the Lamotrigine at a tiny baby dose, and referred me quick smart back to see a psychiatrist. She told me not to beat myself up for bringing this all on myself, because really, who would want to keep taking medication when they’re feeling well? And who, really, who deals with all their problems as soon as they arise? She said I made a very human decision to come off meds, and I have continued making human decisions ever since then when I have buried my head in the sand. It’s hard when the thing you use to make decisions is the thing that’s broken. I’m being a good girl and doing as I’m told, mainly because she smiled at me and told me not to kill myself because things will start to get better now.

Nevertheless, a trip back to psychiatrist-land devastates me. I’m going back in time. I was discharged! That was over, I was fixed, it was in the past, gone, finished. But it’s never finished. Three and a half years ago I spent six weeks off work and here I am doing the same damn thing. I feel like my life is being stripped away from me. How will anything ever get better again? How will I ever recover what has been lost?

Through all of this over the last few weeks, as I have fallen ever deeper into loss and despair, I have felt a gentle, kind presence with me. This is the bit of the blogpost that has been brewing for a while. I have tried writing before and stopped because words haven’t been adequate. Like if I try to touch it it might evaporate. At band practice a couple of weeks ago we sang through some immensely powerful songs. God was present in that room, I felt him close, singing with us, smiling at us.

The first song we sang was ‘When I Survey’.

When I survey the wondrous cross
on which the Prince of Glory died;
my richest gain I count but loss,
and pour contempt on all my pride.

Forbid it, Lord, that I should boast,
save in the death of Christ, my God;
all the vain things that charm me most,
I sacrifice them to his blood.

See, from his head, his hands, his feet,
sorrow and love flow mingled down.
Did e’er such love and sorrow meet,
or thorns compose so rich a crown.

Were the whole realm of nature mine,
that were an offering far too small;
love so amazing, so divine,
demands my soul, my life, my all.

I felt Jesus very gently take my attention away from the vain things that charm me, my desperate desire for independence, my yearning not to be weak, and point me to his pierced hands and feet, his loving smile, the scars on his head. My sadness, my fear, he holds it all safe. He is not taking it away from me. Despite his nearness I remain devastated and I do not feel hope. What I feel most strongly is a savage longing for this life to be over. Jesus is a very frustrating man. But I think he whispers to us all the time and we’re just too busy throwing rocks at ourselves to hear him. Who best to comfort those with mental illness, than the man in whom love and sorrow meet?

I sat down and cried when I heard the words I quoted at the top of the post.

Come away with me, come away with me

It’s never too late, it’s not too late
It’s not too late for you

I have a plan for you
I have a plan for you
It’s gonna be wild
It’s gonna be great
It’s gonna be full of me

Open up your heart and let me in

Is it true? Can there really be a plan for me? Are you sure it’s not too late for me? Believing in Jesus when you’re in the throes of mental illness is a very weird thing to do. The vain things that charm me most are screaming at me that it is too late for me, that there is no plan, that I should close my heart and top myself. Choosing to leave aside the vain things that charm me most (the big one this week has been relinquishing control of my job) and fix my eyes instead on Jesus, the author and perfecter of my faith, is excruciatingly difficult. But this man, he is really quite mesmerising.

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